Elly Marie & Shelby Elyse
Established 1998
the convertible made our hair crazy
hahahaha love this.
Showing posts with label Joyful. Show all posts
Showing posts with label Joyful. Show all posts
Tuesday, March 20, 2012
Friday, March 9, 2012
We'll Call This The Lucky Number 7
So, today is 7 years since the day of my brain surgery....PRAISE THE LORD!!!
Around the End of January in 2005 I started getting headaches in the back of my head, my mom didn't pay much attention, but then by the end of February, I had one everyday and it would not go away. So on March 1, 2005 my mom took me to the Pediatrician, He thought maybe it was a food allergy, but he decided to do a cat scan just for proticol. (later i found out that my blood pressure was out of this world high and that my eyes didn't look quite right) On March 3, 2005 I went in for a cat scan, they took us to the waiting room, and then there was a phone call for us. It was my pediatrician, he said that my brain was covered in fluid but they couldnt see clearly enough to know why, so they gave me and MRI. I thought nothing of it, just being 13, i wasn't thinking something could be terribly wrong. I had a 20 minute MRI About 10 minutes later i was taken up to the Neurosurgery department. And within 10 minutes...
I was diagnosed with a Brain Tumor. Everything is a bit foggy from there on out, but i remember just asking "Am i going to die" and "will i be the same..." The Answers, were encouraging! but my life was in a spiral, and i didn't know why at 13 i would have to be going through this., 6 days later i was in surgery, to try to remove it, because it was causing some things not to function right, and it would have killed me eventually, they said that if we would have waited too long, that i would have seizured and died. The Lord must have really spoken to my mom, because she had the intuition to take me to the doctor, and my phenomenal pediatrian dr johnson knew that it was a little weird, and he knew i needed a cat scan. The Lord was just working!
We were told my surgery would last about 5-8 hours...well they were wrong! I guess i always have to be the center of attention, and have to be a little bit dramatic, because quickly enough 8 hours turned into a whopping 21.5 hours! My poor family had to just sit and wait, the nurses described the process as watching Grass grow, apparetly i had a lot of blood vessels in my little brian! The surgery was Performed by one doctor (Dr. Aldana!) and his team of nurses(Renee and Kelly were my favorites)! We were told that Dr. Aldana drank a few gatorades, ate a sandwhich and went to the bathroom only a handful of times. He is my hero. The man saved my life, it took him almost 24 hours, but the man saved my life!
On March 9, 2005 one surgen at Akron Childrens Hospital SAVED MY LIFE!!!!
I was in the pediatric intensive care unit for a while, then got moved to the oncology floor. Never fear, it wasn't cause it was cancer, it was because i needed the best care possible! My tumor was shipped off to Johns Hopkins hospital in Boston, and they categorized it as a catagorized as an Oligodendro Glioma-Low Grade Neoplasm hahaha say that 5 times fast! We were considering doing radiation for the remaining parts of the tumor, but they decided that i'd been through enough already and that thye would just watch me.
The recovery process was long, again, i only remember little things, because they gave me medicine so i wouldn't remember the trauma. I missed a little over a month of school (mom of course stayed home with me) , and gained alot of weight due to the steroids and such ( that part was not fun! )
I remember the day after i found out that i had a tumor i ended up going to school to visit everyone, and just being in a complete fog, like a nightmare that i couldn’t wake up from… Everyone was talking to me, but i honestly just wanted to be in a uniform that day, and be in class instead of having people tell me how sorry they were for me...
I recieved 100’s of cards and e-mails, countless stuffed animals and too many bouquets of flowers and cookies to imagine. My School even had a special spot i the chapel where you could pray for me! Everyone was praying, literally all around the world. It was hard to imagine that my one little tumor in my head, could effect so many people! But through it all, God was my rock, and my parents and brother and sister were my best friends! I would have died without Jesus on my Side
I was terrified to go back to school, because of the embarrassing lack of hair on the top of my head, i remember coming home from my first day and taking a 4 hour nap, just from exhaustion and having to tell the story 100 million times...
I remember a few weeks after my surgery it was easter, and i got permission from the doctors to go to my grandma's house which is a few hours away and i was sooo excited. I also remember getting black and pink converse for easter! haha
Like i said, i really only remember bits and pieces, my mom and dad are the people who really remember that time the best!
But 1 Doctor on March 9, 2005 saved my life, and changed my point of view on life FOREVER!
Now 7 years later, the part of the tumor that is left in my head hasn’t grown! i am feeling great, except for migranes occasionally, and i realize that Life gives you challenges, and you can either face them alone, or rely on God and Family and Friends. We will continue to do scans just to make sure mr b.t. as i call him isn't causing any trouble. cause slow growing tumors have a mind of their own. My tumor is considered stable, its just precautionary. it gives me a sigh of relief for sure though!
My life verse is Psalm 46:5 "God is within her, she will not fall; He will help her at break of day." And i do not think this could be anymore true for my life. I remind myself everyday of this verse, because it reminds me that there is no reason to worry. God is in complete control over me, He will not let anything happen beyond what i can handle!
Through the whole process everyone i know has been there for me. And I thank everyone who prayed for me through the years, and still lift me and my family up everyday...You all are the real hero's in my eyes...the prayer warriors!
Blessed by a Heavenly Daddy,
Shelby Elyse
This was taken in January at my sister's wedding. I was healthy ( as far as we knew ) & still so tiny! haha i mean you can see my ribs. I was so excited to be the maid of honor!
This was taken the night before the surgery. Those little cheerio things were hooked up to a machine during surgery to help guide the surgen. Im sorry i look nuts...but i was a little overwhelmed!
Easter Day a few weeks after the surgery. This is the only picture we have of me during this whole time. I did not want to remember what i looked like. I was embarassed because i was getting so chunky. But my cousin Kayla convinced me to take a picture with her. Im happy we have this one!
Around the End of January in 2005 I started getting headaches in the back of my head, my mom didn't pay much attention, but then by the end of February, I had one everyday and it would not go away. So on March 1, 2005 my mom took me to the Pediatrician, He thought maybe it was a food allergy, but he decided to do a cat scan just for proticol. (later i found out that my blood pressure was out of this world high and that my eyes didn't look quite right) On March 3, 2005 I went in for a cat scan, they took us to the waiting room, and then there was a phone call for us. It was my pediatrician, he said that my brain was covered in fluid but they couldnt see clearly enough to know why, so they gave me and MRI. I thought nothing of it, just being 13, i wasn't thinking something could be terribly wrong. I had a 20 minute MRI About 10 minutes later i was taken up to the Neurosurgery department. And within 10 minutes...
I was diagnosed with a Brain Tumor. Everything is a bit foggy from there on out, but i remember just asking "Am i going to die" and "will i be the same..." The Answers, were encouraging! but my life was in a spiral, and i didn't know why at 13 i would have to be going through this., 6 days later i was in surgery, to try to remove it, because it was causing some things not to function right, and it would have killed me eventually, they said that if we would have waited too long, that i would have seizured and died. The Lord must have really spoken to my mom, because she had the intuition to take me to the doctor, and my phenomenal pediatrian dr johnson knew that it was a little weird, and he knew i needed a cat scan. The Lord was just working!
We were told my surgery would last about 5-8 hours...well they were wrong! I guess i always have to be the center of attention, and have to be a little bit dramatic, because quickly enough 8 hours turned into a whopping 21.5 hours! My poor family had to just sit and wait, the nurses described the process as watching Grass grow, apparetly i had a lot of blood vessels in my little brian! The surgery was Performed by one doctor (Dr. Aldana!) and his team of nurses(Renee and Kelly were my favorites)! We were told that Dr. Aldana drank a few gatorades, ate a sandwhich and went to the bathroom only a handful of times. He is my hero. The man saved my life, it took him almost 24 hours, but the man saved my life!
On March 9, 2005 one surgen at Akron Childrens Hospital SAVED MY LIFE!!!!
I was in the pediatric intensive care unit for a while, then got moved to the oncology floor. Never fear, it wasn't cause it was cancer, it was because i needed the best care possible! My tumor was shipped off to Johns Hopkins hospital in Boston, and they categorized it as a catagorized as an Oligodendro Glioma-Low Grade Neoplasm hahaha say that 5 times fast! We were considering doing radiation for the remaining parts of the tumor, but they decided that i'd been through enough already and that thye would just watch me.
The recovery process was long, again, i only remember little things, because they gave me medicine so i wouldn't remember the trauma. I missed a little over a month of school (mom of course stayed home with me) , and gained alot of weight due to the steroids and such ( that part was not fun! )
I remember the day after i found out that i had a tumor i ended up going to school to visit everyone, and just being in a complete fog, like a nightmare that i couldn’t wake up from… Everyone was talking to me, but i honestly just wanted to be in a uniform that day, and be in class instead of having people tell me how sorry they were for me...
I recieved 100’s of cards and e-mails, countless stuffed animals and too many bouquets of flowers and cookies to imagine. My School even had a special spot i the chapel where you could pray for me! Everyone was praying, literally all around the world. It was hard to imagine that my one little tumor in my head, could effect so many people! But through it all, God was my rock, and my parents and brother and sister were my best friends! I would have died without Jesus on my Side
I was terrified to go back to school, because of the embarrassing lack of hair on the top of my head, i remember coming home from my first day and taking a 4 hour nap, just from exhaustion and having to tell the story 100 million times...
I remember a few weeks after my surgery it was easter, and i got permission from the doctors to go to my grandma's house which is a few hours away and i was sooo excited. I also remember getting black and pink converse for easter! haha
Like i said, i really only remember bits and pieces, my mom and dad are the people who really remember that time the best!
But 1 Doctor on March 9, 2005 saved my life, and changed my point of view on life FOREVER!
Now 7 years later, the part of the tumor that is left in my head hasn’t grown! i am feeling great, except for migranes occasionally, and i realize that Life gives you challenges, and you can either face them alone, or rely on God and Family and Friends. We will continue to do scans just to make sure mr b.t. as i call him isn't causing any trouble. cause slow growing tumors have a mind of their own. My tumor is considered stable, its just precautionary. it gives me a sigh of relief for sure though!
My life verse is Psalm 46:5 "God is within her, she will not fall; He will help her at break of day." And i do not think this could be anymore true for my life. I remind myself everyday of this verse, because it reminds me that there is no reason to worry. God is in complete control over me, He will not let anything happen beyond what i can handle!
Through the whole process everyone i know has been there for me. And I thank everyone who prayed for me through the years, and still lift me and my family up everyday...You all are the real hero's in my eyes...the prayer warriors!
Blessed by a Heavenly Daddy,
Shelby Elyse
Thursday, December 29, 2011
Our Dancing Song
so for my dad's christmas present i got him a record player...but i also wrote him this song & then recorded it for him...its pretty personal. the first verse describes a dance recital i was in when i was 5, and he was in it with me. the second is my senior prom. the chorus, basically when i was little my dad and i always dance around the house, to james taylor, van morrison, all those guys, and so its a picture of my childhood. the last verse describes what is to come (if it is in God's will for my life that is) i guess we will just wait and see...but here are the lyrics!
Our Dancing Song
i'm in a red tutu
you're in a black suit
dancing me 'round on the tops of your feet
oh daddy, its you and me
i'm in my prom dress
you're on the stairs stressed
waving goodbye to my handsome date and i
oh daddy, i wont be home late
(chorus)
so lets dance the night away
just you and me
sway me back and forth
twirl me around
i wont ever get bored
cause with you daddy i would dance
all night long
& this is our dancing song
i'm in a lace gown
your smiles upside down
he promises that he'll take good care of me
oh daddy, just wait and see
Our Dancing Song
i'm in a red tutu
you're in a black suit
dancing me 'round on the tops of your feet
oh daddy, its you and me
i'm in my prom dress
you're on the stairs stressed
waving goodbye to my handsome date and i
oh daddy, i wont be home late
(chorus)
so lets dance the night away
just you and me
sway me back and forth
twirl me around
i wont ever get bored
cause with you daddy i would dance
all night long
& this is our dancing song
i'm in a lace gown
your smiles upside down
he promises that he'll take good care of me
oh daddy, just wait and see
so lets dance the night away
just you and me
sway me back and forth
twirl me around
i wont ever get bored
cause with you daddy i would dance
all night long
& this is our dancing song
Words: Shelby Elyse Taylor
Music: Alexis Rosen & Shelby Elyse Taylor
Friday, April 1, 2011
Who I Am...Just Me
So lately i have been really reflecting on things that i could change about myself. I think "well maybe if i say this, than that person wont hate me..." or "maybe if i wear this than that girl will want to be my friend..." well i have come to the conclusion that this is NOT a good way of thinking and NOT a good idea. I will never be anyone but me! I think it is a take it or leave it kind of thing, yes i realize that i could probably work on not being so loud and decide that i should not be such a drama queen to gain attention sometimes...yea those are flaws but they do not change who i am.
WHO I AM
I am 5 feet tall. I have brown eyes. I have the curliest hair ever. I have the BEST family. My friends are incredible. I love the LORD with all my heart. I do daiily devotions. I am writing a book. I have an obsession with looking through old picture albums. I like passion fruit tea. I love coffee. I love cheeseburgers and chicken fingers and fries. I love stir fry vegetables. I sleep with a blankie. I have never been in love. I am a Justin Biber fan. I am an aspiring baker and i hope to have a food network show one day. I love shoes. did i mention i love shoes. I have almost every letter saved that has ever been written to me. I am a brain tumor survivor. I love big bows and headbands. I like hello kitty. I like rap. I love the rain and hate the snow. I like the smell of clean laundry and cake batter. I can't wait for Heaven it is going to be wonderful. I am very spunky and you have probably never met anyone like me. I scrapbook. My name means "little rock" I believe that i am put on this earth to lead people to the Lord through unusual ways. My brother, sister, & my cousin Kellie are my Hero's. My daddy is superman. My mama is my best friend. I wonder what a rainbow looks like from Heaven. I want to be on the Ellen show sometime. I love Rachael Ray. I have small feet. Well...that is all for now.
but...
Who I AM...
JUST ME!!!!
Blessings,
Shelby Elyse
Psalm 46:5
WHO I AM
I am 5 feet tall. I have brown eyes. I have the curliest hair ever. I have the BEST family. My friends are incredible. I love the LORD with all my heart. I do daiily devotions. I am writing a book. I have an obsession with looking through old picture albums. I like passion fruit tea. I love coffee. I love cheeseburgers and chicken fingers and fries. I love stir fry vegetables. I sleep with a blankie. I have never been in love. I am a Justin Biber fan. I am an aspiring baker and i hope to have a food network show one day. I love shoes. did i mention i love shoes. I have almost every letter saved that has ever been written to me. I am a brain tumor survivor. I love big bows and headbands. I like hello kitty. I like rap. I love the rain and hate the snow. I like the smell of clean laundry and cake batter. I can't wait for Heaven it is going to be wonderful. I am very spunky and you have probably never met anyone like me. I scrapbook. My name means "little rock" I believe that i am put on this earth to lead people to the Lord through unusual ways. My brother, sister, & my cousin Kellie are my Hero's. My daddy is superman. My mama is my best friend. I wonder what a rainbow looks like from Heaven. I want to be on the Ellen show sometime. I love Rachael Ray. I have small feet. Well...that is all for now.
but...
Who I AM...
JUST ME!!!!
Blessings,
Shelby Elyse
Psalm 46:5
Sunday, March 27, 2011
Saturday, March 26, 2011
Day 25 - Favorite Movie Ever
So tonight i watched Sleepless in Seattle...it is my favorite movie probably ever (yesterday my friend Zak's facebook status was of one of the songs from it, and i just couldnt get it off my mind all day...so tonight i watched it) i love that movie and You've Got Mail. Something about the pairing of Tom Hanks and Meg Ryan gets me everytime. I have always wanted to name one of my daughters Annie after the character from Sleepless. Or Maggie after his wife who passed away. Ever since i was a little girl and saw the movie for the first time, i have loved Jonah...he is just soo cute...hahah i wonder what he looks like now!
The whole movie just makes you feel better. It was the perfect movie when you have the flu or if its raining, or if your just home alone watching it with your dog. Everything about it is wonderful. And the soundtrack is wonderful!
Favorite quotes: "Do you want me to say that you are really really short for your age and they shouldn't say anything because it would hurt your feelings?" ... haha i love this one because i feel like this is so me ... like i would have someone day that!
"How long have you been standing there" ... "FOREVER!" ... haha i just love when he says this!
"Jessica, this is your father. Tell us where he is, right this minute!" .... i love this cause roger ( my father ) has said this before...like "shelby i am your father" hahaha do typical dad...
"so your hearts are like puzzles with missing pieces, and when you get together the puzzles complete" ... i actually wrote a song knda after this quote...thats how much i love it
Favorite Songs from the Soundtrack: Bye Bye Blackbird - Joe Cocker ; Stardust - Nat King Cole ; Make Someone Happy - Jimmy Durante ; When i Fall in Love - Celine Dion & Clive Griffin
well now that all of you think i am absolutely nuts for being so obsessed, lets just end this little post and pretend i didnt just write a whole blog entry about Sleepless in Seattle
xoxo
Shelby Elyse
The whole movie just makes you feel better. It was the perfect movie when you have the flu or if its raining, or if your just home alone watching it with your dog. Everything about it is wonderful. And the soundtrack is wonderful!
Favorite quotes: "Do you want me to say that you are really really short for your age and they shouldn't say anything because it would hurt your feelings?" ... haha i love this one because i feel like this is so me ... like i would have someone day that!
"How long have you been standing there" ... "FOREVER!" ... haha i just love when he says this!
"Jessica, this is your father. Tell us where he is, right this minute!" .... i love this cause roger ( my father ) has said this before...like "shelby i am your father" hahaha do typical dad...
"so your hearts are like puzzles with missing pieces, and when you get together the puzzles complete" ... i actually wrote a song knda after this quote...thats how much i love it
Favorite Songs from the Soundtrack: Bye Bye Blackbird - Joe Cocker ; Stardust - Nat King Cole ; Make Someone Happy - Jimmy Durante ; When i Fall in Love - Celine Dion & Clive Griffin
well now that all of you think i am absolutely nuts for being so obsessed, lets just end this little post and pretend i didnt just write a whole blog entry about Sleepless in Seattle
xoxo
Shelby Elyse
Day 24 - Friends are just sisters from other misters, and brothers from other mothers!
So the past few days have been so so fun!
Lets start with Wednesday...I woke up and made that wonderful pancake breakfast with Simina that you see below, then i ate a couple pancakes, and decided to get ready for the day. Then i went to downtown Hudson with my friend Erin to eat at Aladdins for lunch. There was a CVCA fieldtrip and there were a million Sophomores running around...and of course me and Erin chose a window seat where every person that walked by could bang on the window and say hi to us...the waitress got scared and stayed away for long periods at a time. haha
Then me and Erin went into a few stores and headed back home. Then i drove to my friend Natalie's house and drove with her and my friend Brooke to the Blatchford's for Mama Za! YUMM-O! Then after pizza and salad, we all went to Tommy's for Milkshakes! That was awesome...a long story to go along with that one...but i do not want to embarass anybody so i will not tell it. :) All i can say is that it was one of the funniest things of my life. :)
So thursday, i woke up and ate a Strawberry pop tart and didnt do much, i think i went back to bed for awhile. Then i went to store, talked to my sister, did my devotions and then at night i hung out with mom and dad and watched American Idol & Grey's anatomy! :)
So then Today i just chilled in the morning, then Erin came over to hang out for a little while, then i went to Starbucks with my friend Bri, then i came home and showered and such, then went to Applebees with my friend Steve for dinner...i hadnt seen him since Thanksgiving and that is a long time, so i was excited to catch up! Then i came home, but not for long! I then went to the Root Cafe with Erin and Pete ... that was pretty funny... then we came back to my house and played scrabble. hahaha so friendshipy...
Well i'm not quite sure what tomorrow shall hold for me, but i will be sure to tell you about it!
Oh by the way... Sunday i'm going to CAKE BOSS TOUR! BUDDY ON TOUR! WITH CORRIE! Sooooo STOKED!!! :)
xoxo
Shelby Elyse
Lets start with Wednesday...I woke up and made that wonderful pancake breakfast with Simina that you see below, then i ate a couple pancakes, and decided to get ready for the day. Then i went to downtown Hudson with my friend Erin to eat at Aladdins for lunch. There was a CVCA fieldtrip and there were a million Sophomores running around...and of course me and Erin chose a window seat where every person that walked by could bang on the window and say hi to us...the waitress got scared and stayed away for long periods at a time. haha
Then me and Erin went into a few stores and headed back home. Then i drove to my friend Natalie's house and drove with her and my friend Brooke to the Blatchford's for Mama Za! YUMM-O! Then after pizza and salad, we all went to Tommy's for Milkshakes! That was awesome...a long story to go along with that one...but i do not want to embarass anybody so i will not tell it. :) All i can say is that it was one of the funniest things of my life. :)
So thursday, i woke up and ate a Strawberry pop tart and didnt do much, i think i went back to bed for awhile. Then i went to store, talked to my sister, did my devotions and then at night i hung out with mom and dad and watched American Idol & Grey's anatomy! :)
So then Today i just chilled in the morning, then Erin came over to hang out for a little while, then i went to Starbucks with my friend Bri, then i came home and showered and such, then went to Applebees with my friend Steve for dinner...i hadnt seen him since Thanksgiving and that is a long time, so i was excited to catch up! Then i came home, but not for long! I then went to the Root Cafe with Erin and Pete ... that was pretty funny... then we came back to my house and played scrabble. hahaha so friendshipy...
Well i'm not quite sure what tomorrow shall hold for me, but i will be sure to tell you about it!
Oh by the way... Sunday i'm going to CAKE BOSS TOUR! BUDDY ON TOUR! WITH CORRIE! Sooooo STOKED!!! :)
xoxo
Shelby Elyse
Friday, March 25, 2011
Day 23 - Pancake Morning!
So a couple days ago Simina came over for Pancakes with her little sister Becca, it was early in the morning and we were very tired...but we decided that taking pictures was probably a good idea anyways! Excuse my morning face...
So This is the nice table i set...
Me and Simina...SO EXCITED...hahahah
Pancake Mix...Organic of Course!
2 Tablespoons of Oil...i am sorry that my eye is crossed...if it scares you i'm even more sorry...i can't help it, it just goes like that, i need surgery probably, but i refuse to get it....hahaha
Simina & Becca...SO CUTE!
Soo we never took a picture of the finished product...so i just picked a picture off google...haha :)
xoxo
Shelby Elyse
So This is the nice table i set...
Me and Simina...SO EXCITED...hahahah
Pancake Mix...Organic of Course!
2 Tablespoons of Oil...i am sorry that my eye is crossed...if it scares you i'm even more sorry...i can't help it, it just goes like that, i need surgery probably, but i refuse to get it....hahaha
Simina & Becca...SO CUTE!
Soo we never took a picture of the finished product...so i just picked a picture off google...haha :)
xoxo
Shelby Elyse
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